NEW “Open Door” booklet – Friedreich’s Ataxia

Posted on January 16, 2021

Today we launch the fifth booklet in our “Open Door” series of learning tools. The booklet focuses on Friedreich’s Ataxia.  

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New self-management programme – MyCreativeLife

Posted on December 21, 2020

We have developed a self-management programme to work alongside MyLifeTool.  MyCreativeLife uses creative activities to support people with long-term conditions to reflect on their self-management experience.  We have created this programme handbook for practitioners to run the programme with clients.  Further details and resources can be found at MyLifeTool.co.uk MyCreativeLife Practitioner Handbook

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Activity sheets

Posted on June 12, 2020

This week we have launched our new programme of creative self-management support for people with neurological conditions and their carers and family members.  Every one to two weeks we will post a new activity sheet with simple ideas/activities for people to try out.  These activities can help people reflect on their self-management journey or their...

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Carers Week, 8th June 2020

Posted on June 6, 2020

Engaging with patients and carers has always been at the core of our work.  We deliver multi-neuro peer support to include carers, to ensure people have access to informed support and information to help the partnership of care for people with a neurological disorder. This Carers Week, Middlesbrough Carers Partnership is featuring us as a spotlight...

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Funding from County Durham Community Foundation

Posted on June 6, 2020

Thank you to the County Durham Community Foundation for awarding us £5,000 to support people living with neurological conditions during the coronavirus pandemic. Report in the Northern Echo

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Published research

Posted on June 6, 2020

Our first peer reviewed research publication was published last month in Disability and Rehabilitation. The paper proposes a new framework to support people with the self-management of their neurological conditions.  Our findings showed that there is commonality in the experience of self-management across neurological conditions and we hope the framework will be of use to...

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Thank you from the County Durham Lieutenancy

Posted on June 6, 2020

We have received a thank you card from the County Durham Queen’s representative, Lord Lieutenant Sue Snowdon, to acknowledge ‘ the incredible support and service’ during the Covid-19 crisis.

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NEW – Presentations of Narcissistic Personality Disorder – Open Door series

Posted on October 10, 2019

For our contribution to the Every Mind Matters campaign, we have launched a new booklet in our Open Door series – “Presentations of Narcissistic Personality Disorder“.  It includes real life narratives of experiences of people who have struggled to put their lives together whilst managing the impact of a person who presents the traits of a...

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Launch of a new self-management tool: 23rd October 2019

Posted on October 5, 2019

Teesside University and Neuro Key have been working with people with long-term conditions to develop a new self-management tool for people with long-term conditions.  MyLifeTool is a self-management tool that people can use long-term.  It encourages people to reflect upon their journey living with a long-term condition and learn about their condition, themselves and what...

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Blue badge factsheet

Posted on September 27, 2019

The announcement by Justin Tomlinson MP that people with hidden disability can now have access to a Blue Badge has raised a number of issues about public understanding of the Blue Badge scheme, since people with hidden disability have always had the right to apply for a Blue Badge.  Getting one is a different story....

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