TEWV Resilience Fund Report March 2022

Posted on April 8, 2022

Read our report for the TEWV Resilience Fund, in collaboration with the FASD Network UK, examining the challenges faced by families living with neurodevelopmental conditions.  

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NEW Open Door booklet focusing on Dystonia

Posted on February 27, 2022

We are proud to launch our latest “Open Door” booklet focusing on living with Dystonia, developed in partnership with Adder.  

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NEW – Neurodevelopmental Conditions “Open Door” booklet now published

Posted on April 15, 2021

We are delighted to announce another addition to our “Open Door” series of learning tools.  The latest booklet includes real life narratives of experiences of adults with or parent caregivers supporting people with a neurodevelopmental condition.  

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NEW “Open Door” booklet – Friedreich’s Ataxia

Posted on January 16, 2021

Today we launch the fifth booklet in our “Open Door” series of learning tools. The booklet focuses on Friedreich’s Ataxia.  

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New self-management programme – MyCreativeLife

Posted on December 21, 2020

We have developed a self-management programme to work alongside MyLifeTool.  MyCreativeLife uses creative activities to support people with long-term conditions to reflect on their self-management experience.  We have created this programme handbook for practitioners to run the programme with clients.  Further details and resources can be found at MyLifeTool.co.uk MyCreativeLife Practitioner Handbook

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Activity sheets

Posted on June 12, 2020

This week we have launched our new programme of creative self-management support for people with neurological conditions and their carers and family members.  Every one to two weeks we will post a new activity sheet with simple ideas/activities for people to try out.  These activities can help people reflect on their self-management journey or their...

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Carers Week, 8th June 2020

Posted on June 6, 2020

Engaging with patients and carers has always been at the core of our work.  We deliver multi-neuro peer support to include carers, to ensure people have access to informed support and information to help the partnership of care for people with a neurological disorder. This Carers Week, Middlesbrough Carers Partnership is featuring us as a spotlight...

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Funding from County Durham Community Foundation

Posted on June 6, 2020

Thank you to the County Durham Community Foundation for awarding us £5,000 to support people living with neurological conditions during the coronavirus pandemic. Report in the Northern Echo

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Published research

Posted on June 6, 2020

Our first peer reviewed research publication was published last month in Disability and Rehabilitation. The paper proposes a new framework to support people with the self-management of their neurological conditions.  Our findings showed that there is commonality in the experience of self-management across neurological conditions and we hope the framework will be of use to...

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Thank you from the County Durham Lieutenancy

Posted on June 6, 2020

We have received a thank you card from the County Durham Queen’s representative, Lord Lieutenant Sue Snowdon, to acknowledge ‘ the incredible support and service’ during the Covid-19 crisis.

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